VP, Patient Advocacy

Location:  San Rafael, California Category: Corporate

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Description

Who We Are

BioMarin is a global biotechnology company that relentlessly pursues bold science to translate genetic discoveries into new medicines that advance the future of human health.

Since our founding in 1997, we have applied our scientific expertise in understanding the underlying causes of genetic conditions to create transformative medicines, using a number of treatment modalities.

Using our unparalleled expertise in genetics and molecular biology, we develop medicines for patients with significant unmet medical need. We enlist the best of the best – people with the right technical expertise and a relentless drive to solve real problems – and create an environment that empowers our teams to pursue bold, innovative science. With this distinctive approach to drug discovery, we’ve produced a diverse pipeline of commercial, clinical and preclinical candidates that have well-understood biology and provide an opportunity to be first-to-market or offer a substantial benefit over existing therapeutic options.

Position Summary: Vice President, Patient Advocacy
 
BioMarin is seeking a Vice President, Patient Advocacy to lead the company’s global patient advocacy function and ensure patient perspectives inform key decisions across the organization.
 
Reporting to the Chief Corporate Affairs & Patient Advocacy Officer, this individual will lead an international team of more than 10 patient advocacy professionals and work with the team to set the strategy for how BioMarin engages with patient communities across the portfólio. This leader will build trusted relationships with advocacy organizations, ensure patient insights are integrated across the product lifecycle, and serve as a senior advisor to internal leaders on community priorities, emerging issues and engagement strategies.
 
 
This role requires both external credibility and the ability to influence enterprise decisions internally. The ideal candidate brings significant patient advocacy experience, strong leadership capability, and sound judgment in complex, highly regulated environments. Experience in rare disease is strongly preferred.
 
 
Key Responsibilities
  • Lead BioMarin’s patient advocacy strategy across the portfolio
  • Build and sustain trusted relationships with patient advocacy organizations, community leaders and other external stakeholders
  • Ensure patient insights are integrated into decision-making across research, clinical development, market access, commercialization and long-term support
  • Lead, develop and scale an international team of more than 10 patient advocacy professionals
  • Partner cross-functionally to anticipate issues, address community concerns and align engagement strategies with company priorities
  • Co-create initiatives with patient groups that advance shared goals, including disease awareness, earlier diagnosis and access to innovation
  • Oversee advocacy budgets, resource planning and key investment decisions
  • Provide counsel to the company’s grantmaking review process to support fair, compliant and effective decision-making
  • Represent BioMarin at conferences, advocacy events and external forums
  • Ensure all patient engagement activities comply with applicable laws, regulations and internal policies
Qualifications
  • Bachelor’s degree required; advanced degree preferred
  • 10+ years of relevant experience in pharmaceutical, biotechnology, healthcare or consulting environments
  • Significant experience in patient advocacy or closely related external engagement roles
  • Strong preference for experience in rare disease and/or biopharma
  • Proven success leading strategy in a complex, international and highly regulated environment
  • Significant people leadership experience, including in matrixed organizations
  • Deep understanding of healthcare systems, reimbursement and access, and regulatory environments
  • Strong judgment, executive presence and ability to influence senior stakeholders
  • Exceptional communication and relationship-building skills

Location
Role is based at BioMarin's San Rafael, CA HQ.  Employees are expected to work onsite at least 2 days per week.  Additional travel dependent on business need.
 
Why This Role Matters
This role is central to how BioMarin listens to, learns from and partners with the rare disease communities it serves. The Vice President, Patient Advocacy will help ensure patient perspectives shape key decisions while strengthening trust, transparency and partnership with patients, families and advocacy organizations.
 

Note: This description is not intended to be all-inclusive, or a limitation of the duties of the position. It is intended to describe the general nature of the job that may include other duties as assumed or assigned.

Equal Opportunity Employer/Veterans/Disabled

An Equal Opportunity Employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, or protected veteran status and will not be discriminated against on the basis of disability.
 
 

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